Wednesday, February 3, 2010

Starting on a new med tonight.

I am so happy to be starting on a new medicine tonight that is supposed to help with nerve pain without being a narcotic. With Fibromyalgia nerve, muscle and tendon pain are quite common. A lot of times a doctor will prescribe a narcotic for pain, but what ends up happening is the narcotic doesn't really work so patient takes more and then more and then gets addicted and then wonders why they are so sick all the time. It is a vicious cycle. Especially if you go to a doctor that does not know much about or believe in Fibromyalgia.

My doctor appointment went very well and he wrote me scripts for the meds that the Mayo Clinic had picked out for me and tonight is the first night of the new plan. After 2 weeks of being home and adjusting to being off some medications I am now introducing a new one. It's called Neurontin and you have to start slow with it so you know if your body will tolerate it and if it is helping. For some people it's a miracle drug and for others a nightmare. But I am a miracle kind of girl. I am finally completely off the Plaquenil. Talk about a scary drug...glad to not be taking that one anymore. Though today is day 14 off it, my body is showing signs of it missing. I am getting the shooting pains in my hands and feet. My fingers are starting to swell. We will just have to pray the the new medicine fills the gaps.

It's 9:30 pm and I am in bed for the night. My new plan is take my meds no later then 9pm so that I can be sleeping by 10 or 11. That way in the morning I will have had enough sleep to be able to get out of bed. This is a new thing for me as I usually feel at my best at night time and I don't want to go to bed, I want to clean my house, or watch a cool tv show. But I am adjusting. I have changed my eating habits also. In the mornings, I still have my coffee. But I also have an ensure or glucerna chocolate meal replacement and take a lot of supplements and vitamins. In the 2 weeks I have been doing this my hair is growing again, my finger nails are looking healthier and I am not needing to nap in the afternoon anymore. I still get tired but I don't HAVE to nap.. The time is between 4 and 6 pm. I really have a hard time then, but I have starting cooking from scratch and that helps get through that time slot pretty good. I have been making a lot of soup receipes. It's been so fun and Benny is right there with me cooking in the kitchen. Soup and bread have been our main ingredients since I am still getting some teeth work done. It should all be finished by the end of this month, and then maybe I will be able to enjoy something besides rice, pasta and soup..lol.

I am still meeting with my counselor for work on me. I have read the book "Boundries" and now am working on completing the workbook. That is much more thought provoking then the book and I am struggling to make myself work on it. But life as we know is a journey and I am on this path so that I can be me. A me that I like and am proud of being. I want my kids to honor and respect me like I see my dad and his brother take care of their mom, my grandmother. If I don't go on this journey to figure out some of this stuff, then I will not become that person. Health is not just physical...it is spiritual and emotional also. So am working on that. Hope you are in a good place right now. Feel free to write or comment anytime. I would love to hear what you have to say.
Love, becca

2 comments:

  1. I am so in awe of you and your journey. You inspire me and make me want to do more. I love you and love having you in my life!

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  2. I am so proud of you. What you are doing is VERY HARD WORK. Many people choose not do do the work necessary to better their lives, but you are choosing to take on the tasks and do the work instead of use your conditions as an excuse to take the easy path. Good for you! You will reap the benefits, as will your children.

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